I don't do this often - the last time must be easily 8 years ago on LJ! But here goes:
David is eight years old. He lives with Down's Syndrome, Autism, something akin to Ehlers–Danlos syndrome
, and from what I remember some of the most dreadful allergies out (from what I recall when he was a baby, many things are toxic to him, and feeding him was an ongoing challenge). His parents once worked with me, although they have now moved to Cape Town, and his mother was a good friend of Guy's when Guy was an undergrad student. Two years David, aged 6, had major neck surgery to help stabilise his neck and prevent spinal cord damage. Because of his EDS he wears supports and knee braces permanently to stabilise his ankles and knees so he can put weight on them without damaging himself.
This year, David has been given the opportunity to join in the excitement of the world-famous Cape Argus Cycle Tour
(taking place in 17 days) as a disabled rider for the Chaeli Campaign
. By doing this, he will also be able to raise awareness for the Chaeli Campaign and the work that they do to help children with disabilities. All funds raised will go towards David’s ongoing medical expenses and specialised schooling costs. Brett is the awesome cyclist pictured below who will be the one the pulling David’s buggy with his bike. What an experience for any 8 year old, and even more so for one who can't move easily alone - flying down a cycle route, in the midst of huge excitement, in his own special chariot, feeling like a hero.
I know that for most of you, this child's life is happening half a world away. You don't know him. Hell, I don't even know him, but having had something very similar to EDS as part of my fibro a few years ago, I know how much pain he must be having to meet courageously every day. At age 8. That's just not fucking fair, IMHO. I also know, from friends with kids who are on the autism spectrum, what special kids theirs are, but at the same time, the resources and cash their parents need to try and provide them with the opportunities they need to grow and thrive.If you're in South Africa:
You can make a direct deposit using these details:
Banking Details: The Chaeli Campaign
Bank: Standard Bank
Branch: Blue Route
Branch Code: 025609
Account #: 076674150
Reference: 1561 & Sponsor's NameIf you're overseas:
Because our the weakness of our currency, any few dollars or pounds or euros that someone overseas could spare would convert to a significant contribution in South African Rand
. Hell, your parking change could make a difference! If you would like to help this child in his adventure, and his parents in what I know as a sufferer of chronic illness myself must be a challenging job, you could donate to the fundraiser here
(Use the cyclist's list number - 1561 - and your name as a reference).
You OBVIOUSLY don't have
to donate, or comment, or feel in the slightest bit bad if you don't. I know some of you don't have 2 cents to rub together, and have your own families and issues for which you need you to try and raise money. But I very humbly ask you, if you can afford it, and particularly if you're having a rough time lately - consider maybe responding by paying love forward. It makes you feel empowered despite your own difficulties, and the love *does* come back to you, always, from someone else. Because every time life kicks you in the teeth and you think "Why the fuck does no-one care, or help me?" You can be that person, for someone else. You can answer that question for someone else, in the way you wish someone would answer it for you. And the more you be that person, I've found, somehow the more the same thing happens for you. And if it doesn't happen every time - so what? There's a net gain of kindness and a net decrease of suffering in the world.
Thanks for reading. If anyone would like to link here to boost the signal, you can - it's a public post =)